Wednesday, May 9, 2012

been a while..

   Sorry I haven't posted in a while. Carsyn was recently hospitalized and was there for 6 days. His seizures were so bad i had to call an ambulance to take him to WCA and fly him out to Women and Children's Hospital of Buffalo. He had over 30 seizures at home, and more than 20 at WCA. We had to get his seizures under control and then found out that he HAS to have his tonsils and adnoids out ASAP because they are causing his oxygen levels to dip. He is now home but will be going in for surgery to get them out and later he will be getting a VNS put in. A VNS is as big as a poker chip,. and goes in where a pace maker would go and has a wire that connects to a nerve that goes to the brain. This will send 30 second shocks every 3-5 minutes and when he goes into a bad seizure I swipe a little magnet type bracelet across the site and it sends a more potent 60 second shock to that said nerve. This is supposed to help greatly with his seizures. but it is a guessing game on whether it will work or not. But I am willing to take the chance for him.  I hate that he has to go through this every day. He can't control them, and they really scare him sometimes. I am only doing what I can for my son.

  When I got home I found out that there was someone on my facebook (I know exactly who you are, go ahead, see if you're still my friend on facebook, My guess is not.) who was reporting everything I said to another person (who is nosey and talks a lot of crap about EVERYONE). Well these people are talking about me being a gold digger and talking crap about how I handle things with my child. My post that they were talking about said this:
  
  So let's take a look at what Buffalo Children's has done to my son in less than 24 hours.
Made him throw up: check x3!
put him on meds that not only fuck him up but still manage to NOT control seizures: check!
pissed me off: check x20913809284091328409813
let my son lay in a puddle of puke and pretend its not there: check!
fuck him up so bad he can't even have a seizure right: Check x4
Congratulations Buffalo Children's. not only have you succeeded in making my kid Worse than he was before we got here but you have also managed to piss me off to the point of screaming at you, got me to call a hospital 3 hours away to talk about a transfer, after my son threw up your nursing staff never changed his chuck and pillow case (I had to put a towel under him because the nurse was ignoring me), and made it so my son can't even open his eyes. I hope your proud because if anything happens to my son I'm taking you for all your worth.(promise ;) )



  Now everything I said in that post was the truth.  They were not caring for my son the way he should have been cared for. They were not listening to me, and I was pissed. If anything had happened to MY SON while we were there because they were not taking care of him the way they should have I WOULD have taken them for everything. I am a damn good mother. I do EVERYTHING I can for that boy.that does not make me a gold digger. Who are to to judge me? You have no children so how do you know how things should be handled. you have NO idea what I go through for Carsyn. you don't know ANYTHING about him. I don't tell people these things for a reason. Because I don't think it's ANY of their business. You are not part of my life for a reason and you will not be part of my son's life. the sad part is that this person thinks they should know everything about everyone. i can bet she's asked about my family and where I come from, what I'm like and what I do. the person she is getting this information from doesn't know anything about my life anyway. BUT the person who is telling her all of this knows about Carsyn, she worked somewhere where she is NOT supposed to share this information with ANYONE. How much do you want to bet she's told this other lady? My guess is she has. 

  So why is that people have to dig into my life and analyze everything i do? Are you that unhappy with your life that you have to put other people down? just be aware of the fact that if anything is said around me about my son that I find shouldn't be said I WILL come unglued. I will NOT deal with people speaking ill of Carsyn, especially if I'm there to hear it. but i know this person won't say anything. They are one of those people that play good to your face and talk about you behind their back. I can't stand people like that. Now we know why you are ALONE. 

  Now that i'm done ranting about that I have to give some credit to a wonderful mom. I watched her video and cried. I'm so glad she didn't abort her child and that she is so proud of him. This child is truly beautiful. and this momma is truly special. As are all mom's of special needs children. so i'll leave you with this video and i'll post again soon. 

<3 So until next time :)







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